Many types of graft vs. host disease (GVHD) affect men and women in similar ways — skin is skin, and lungs are lungs, no matter your sex. But when it comes to GVHD of the urinary system and genitals (also known as genitourinary or urogenital GVHD), things diverge a...
I think we’ve all heard the Pepto Bismol® jingle…you know the one… “If you have nausea, heartburn, indigestion, upset stomach, diarrhea…” (I bet you just sang that as you read it, and I’m sorry…it’ll be stuck in your head all day now!) For people who haven’t had a...
Graft vs. host disease (GVHD) of the nervous system — meaning GVHD that affects either the central nervous system (CNS-GVHD) or peripheral nervous system (PNS-GVHD) — is a serious manifestation of the disease. Because our nervous systems control so many different...
It’s completely normal to feel anger, shock, and sadness when — after going through the extremely difficult transplant experience — you’re hit with graft vs. host disease (GVHD). The uncertainty of not knowing whether your symptoms will improve, how long they’ll last,...
When graft vs. host disease (GVHD) affects the joints, fascia, and muscles throughout the body, movement becomes harder. Joint stiffness, muscle pain, and weakness are common, and can make carrying out daily activities difficult. Imagine a bicycle for a moment… the...
If you were alive in the 1980’s, you may have heard G.I. Joe impart this important piece of wisdom at the end of an episode: “Now you know…and knowing is half the battle.” The other half of the battle—as anyone living with a chronic disease like graft vs. host disease...
In a significant development for patients battling chronic graft-versus-host disease (GVHD), the U.S. Food and Drug Administration (FDA) has granted approval to Niktimvo™ (axatilimab-csfr), a groundbreaking anti-CSF-1R antibody. This approval marks a pivotal moment in...
If you are suffering from eye problems after bone marrow transplant — things like dryness, itching, redness, and pain — you might have ocular GVHD. When you receive someone else’s stem cells during a bone or blood marrow transplant, the donor’s cells might mistakenly...
Serving up Nutritional Know How and Resources as We Gear Up for the Holidays When: Wednesday, December 13, 2023 at Noon EST Note: start time will vary by time zone The nbmtLINK invites you to participate in this FREE session. Register Here Today! A Telephone Support...
Improving Life for Patients with cGVHD with a Focus on Lung Issues, Psychosocial Support, a Personal Perspective, and More When: Wednesday, December 6, 2023 at Noon EST to 1:30 pm EST (1.5 hours) Note: start time will vary by time zone • Closed Captioning Available...
Let’s spread some love this National Family Caregivers Month! As a caregiver, you know caregiving is one of the hardest and most loving things a family member, a friend, or a professional can do for someone with blood cancer. Every act matters—whether it’s taking care...
Let's Tackle It All: Guidance for the Long Haul Post Transplant Read more about this important, free event below. The date is Nov. 8, 2023, from Noon to 1:30 pm EST. This program will offer Closed Captioning. [button...
A FREE Call In Telephone Support Program for Patients and Their Families/ Caregivers/ Loved Ones Presented by the National Bone Marrow Transplant Link, www.nbmtlink.org Lunch & Learn with the LINK: Navigating the Emotional Rollercoaster of Cancer Special thanks to...
This month’s call-in program will focus on BMT care partners. Michelle M. Bishop, PhD, a licensed psychologist specialized in coping with cancer and caregiving, will talk about what the BMT survivorship road is like for many family caregivers, noting that it can be...
A Telephone Support Program for Patients,Families/Caregivers/Loved Ones Wednesday, July 19 NOON EST (one hour) This month’s call-in program will focus on finding your new normal post-transplant. Rita Abdallah, LISW-S, ACSW, Speaker & Wellness Coach, willbreak it...
Special thanks to our generous sponsors: The Leukemia & Lymphoma Society, Incyte, Omeros Corporation and Pharmacyclics & Janssen. We also thank our Esteemed Link Partners. This month’s call-in program will focus on Myelodysplastic syndromes (MDS). Dr. Arpita...
This month’s call-in program will focus on feeling left behind when diagnosed with cancer with an emphasis on young adults. Juliane Belisle is a Licensed Independent Social Worker with 25 years’ experience and a specialization in serving the psycho-social needs of...
This month’s call in program will focus on Multiple Myeloma featuring featuring Dr. C. Ola Landgren, M.D., PhD, Professor of Medicine, Chief of Myeloma Division, Director of the Sylvester Myeloma Institute. Dr. Landgren’s clinical interests include novel therapeutics,...