A stem cell transplant and the possibility of graft-versus-host disease (GVHD) can bring a lot of questions. Whether you’re preparing for transplant, adjusting to recovery, or living with GVHD, having the right information can help you feel more informed and better prepared for the conversations ahead.
At the Meredith A. Cowden Foundation, we’re committed to providing practical, patient-friendly resources that support individuals and families throughout their journey. We’ve created three free downloadable resources to help you better understand the transplant and GVHD journey, prepare for conversations with your healthcare team, and keep track of what matters to you along the way.
Making Sense of the Transplant Journey
The transplant journey looks different for everyone, but understanding what to expect can make each step feel a little less overwhelming.
Making Sense of the Transplant Journey explains important topics like the first 100 days after transplant, the difference between acute and chronic GVHD, symptoms to watch for, and ways to care for your emotional well-being during recovery. It also includes a helpful symptom checklist and space to write down questions for your healthcare team.
Download: Making Sense of the Transplant Journey
Figuring Out GVHD, Together
Healthcare decisions are most effective when patients and providers work together. This printable worksheet is designed to help you prepare for appointments by organizing your symptoms, questions, treatment goals, and priorities.
By taking a few minutes to reflect before your visit, you’ll be better equipped to have meaningful conversations with your care team and participate in shared decision making.
Download: Figuring Out GVHD, Together
Finding Your Groove in the GVHD Journey
Living with GVHD isn’t always a straight path. Symptoms may come and go, treatments may change, and what you need from your care team can evolve over time.
Finding Your Groove in the GVHD Journey helps explain why GVHD treatment may change and introduces common types of treatment. It also includes space to track symptoms, treatments, side effects, mood, and energy, along with questions you can bring to your next healthcare appointment.
Download: Finding Your Groove in the GVHD Journey
Caregiving: A Guide to Caring for Your Loved One and Yourself
Caring for someone living with GVHD can be meaningful and rewarding, but it can also feel overwhelming. Your role may change over time as you help monitor symptoms, manage appointments and medications, communicate with the healthcare team, and provide day-to-day support.
Caregiving: A Guide to Caring for Your Loved One and Yourself offers practical guidance for navigating those responsibilities while remembering to care for yourself, too. It includes tips for recognizing changes, preparing for appointments, knowing when to contact the care team, asking others for help, and using a daily care checklist to keep track of important details.
Download: Caregiving: A Guide to Caring for Your Loved One and Yourself
You’re Not Alone
Every transplant and GVHD journey is unique, but you don’t have to navigate it alone. We hope these free resources provide practical guidance, encourage meaningful conversations with your healthcare team, and remind you that support is available every step of the way.
Browse our growing collection of patient and caregiver resources to find additional information, education, and support from the Meredith A. Cowden Foundation.